The Carter Center for Brain Research in Holoprosencephaly and Related Malformations at Texas Scottish Rite Hospital for Children was created to gather, organize, analyze and share information about holoprosencephaly (HPE).
You can help us make kids’ dreams possible by designating your generous donation to the HPE program at Scottish Rite Hospital. Your gift allows us to continue our mission to educate and support the families of children diagnosed with HPE, and conduct research to advance knowledge of this complex condition.
- We are committed to maintaining an International HPE Registry, an ongoing database of children diagnosed with HPE, and a website for professionals and parents which provides basic information and current treatment options for families, as well as information for clinicians and researchers.
- We are dedicated to supporting and conducting research to advance knowledge that will assist scientists in understanding the cause, incidence, symptoms, and current treatment options for children with HPE. By making this information available, investigators will be better able to test new ideas and treatments for current and future patients.
- We are focused on identifying patient and family needs, promoting healing and adaptation, locating resources, linking families to sources of support, and implementing programs to ensure that the needs of patients and families are met. We have a specialized clinic for children diagnosed with HPE to gather data, implement programs for clients and families, and evaluate outcomes.
We rely on donations to maintain these vital initiatives. Your generosity will support our research programs and help disseminate information to professionals and families via conferences, workshops, newsletters, and publications. Your gift will help provide specialized medical equipment, medications, and formula for patients, and allow us to continue to care for all kids, regardless of any family’s ability to pay.
If you prefer to send your donation by mail, please download the HPE Donation Form and send to the address listed on the form. For more information about donation opportunities, such as equipment, medical supplies and toys, please contact the Scottish Rite Hospital Development department at 800-421-1121, ext. 7650.
If you have additional questions or concerns, please contact:
Nancy Clegg, RN, CNS, PhD, CCRP
National Holoprosencephaly Project Director
Texas Scottish Rite Hospital for Children
Department of Neurology
2222 Welborn Street
Dallas, TX 75219
Phone: 214-559-8411, 800-421-1121, Ext. 8411 | Fax: 214-559-8383 | Email: Nancy.Clegg@tsrh.org
Thank you for helping our children and their families!